For Charity

When someone struggles, I help. When someone celebrates, I join in. But sometimes it’s a little bit of both, with hard stuff and happy stuff all intertwined, and I’m up for that too.

This is for Charity.

 

Dear Charity,

I know today you’re thinking back to a year ago when you admitted you needed help and went somewhere you could get it. I know it’s a hard day to think of. But it wasn’t just a hard day – it was the start of something.

Today you don’t have to worry about whether a year from now you will wish you had started today, because you’ve already begun. And you’ve come a long way, baby. Even if you still struggle, you are making progress and you’re where you need to be.

So don’t worry about this day a year ago, or this day a year from now. Focus on today.

You are where you need to be.

xo

Beating Cancer With Love

September is Ovarian Cancer Awareness month. This disease barely registered with me until my mom showed up on my doorstep the day after I got home from my honeymoon and told me she had a tumour the size of a grapefruit. She’s here today to tell her cancer story. 

***

How do you survive a cancer that has a 30% survival rate? It’s been 7 years since my surgery and I have long since been declared free of ovarian cancer, but I’m still not sure of the secret. Truly I think my time had not come. However, in addition to good care I firmly believe positive thinking and a huge dose of support are key.

Just before our oldest daughter’s wedding – first wedding, oldest of four – we were putting the the last details of The Plan in place. The couple wanted a relaxed get together with out of town guests so we planned a buffet at our house after the rehearsal.

I was feeling not so good. Unusually for me I decided to go to the doctor; I didn’t want to be sick for the wedding. If not for that wedding I doubt I’d have made it.

teal ovarian cancer ribbon“How long have you had this growth?” my doctor asked.

“What growth?” was my response.

I’d read about the signs of ovarian cancer but there was no family history so I didn’t think it could happen to me. As it turned out I did have several of the signs.

By the Tuesday before the wedding I’d had blood tests. My CA125 score was really high, six times what it should be. An ultrasound was scheduled. The technician, looking serious, promised to have the result to my doctor by Friday. I told her to wait until after the wedding but it was there that afternoon, which seemed like a bad sign.

An MRI was scheduled for Thursday. My husband and I sneaked away saying we were picking up supplies for Friday’s dinner. By then I knew it was serious but (fortunately) didn’t have time to think. And of course we couldn’t tell anyone. How could we tell the other kids if I didn’t tell the bride? And how could they keep a secret like that? On the other hand for me not talking about it may have carried me through!

The wedding was wonderful, a huge success. I don’t remember much but do have one flash of memory, quoting an Ogden Nash poem during the speech I made on behalf of my husband and me: “To keep your marriage brimming, With love in the loving cup, Whenever you’re wrong admit it, Whenever you’re right, shut up.”

When it was done my marvellous gynaecologist oncologist suggested I do a course of chemotherapy “in case of rogue cells”. She was pretty sure she’d got it all and she would like to declare me cured before she retired. My family said I wasn’t through with life yet. (Remember that positive thinking component?)After that it was reality time. I was at the top of the surgery list and in at the first cancellation. The Universe decided it was to be right after the honeymooners got home.

My city has a terrific treatment facility due to a generous donation. The chemo room is surrounded by windows and trees. And I am truly blessed in my family. One of the kids came each time I went to my day-long chemo treatment. My husband (who had to skip the IV insertion part because of needle phobia) brought lunch. There was never nothing to do or nothing to say.

I had a few days of miserable neuralgia each time but limited nausea because of the timely invention of a good anti-nausea drug. I was bald and puffy from steroids and my energy was low but I never doubted I could make it. I even worked part of the time. What I remember now is the sea of love. That was the most important therapy.

My out of town daughter sent me a lovely journal suggesting I keep a sunshine journal, putting in only things that made me smile. (I am on the 4th one now and still smiling.) She invited me to come on a soul journey after chemo was over, to drive to the mountains for an injection of peace, hope and serenity.

A friend sent me to a wonderful alternative treatment program during the chemotherapy time.

My oldest daughter came with me and also gave me a treasured silver bell charm from her wedding to wear.

My son, who was both working and commuting to Vancouver for classes, came to one chemo treatment, supposedly for an hour and stayed 4 hours, causing him to miss his ferry and his class.

My healer daughter supported me in listening to my body rather than well meant advice and found me a wonderful cancer patient yoga CD which I still use.

People made marvellous soups and dropped them off. People sent plants and flowers. My son-in-law gave me mind-bending crossword puzzles. My husband did the cooking. My cherished colleague said, “go away and heal” and looked after my business. Another friend sent me some wonderful meditation CDs. How could I not get better?

Out of meditation came a couple of lullabies that appeared in my head for (then nonexistent) grandchildren. That was when I knew it was going to be okay for sure. I don’t know how to write music down. I had to be here to sing them myself.

Grandmother and newborn grandchild

Grandma and Connor when he was a couple of hours old

***

I will be forever grateful that my mom’s cancer was caught in time for her to be treated and fully recover. Please make sure you know the symptoms. Your grandchildren will be grateful.  

PS The colour of my blog – similar to ovarian cancer teal – is a total coincidence, and one I only caught today. I think it was meant to be.

Because I am a Survivor – Guest Post by The Empress

My guest poster today is someone many of us know and love. I don’t know when I first met The Empress – she was always just there. And that’s my experience of her now – she’s there, popping into posts when you need some love, offering to help someone, and keeping her PPD radar going so no suffering mother has to do it alone. She’s just always there.

I met Alexandra in San Diego while at BlogHer ’11 and she was every bit as lovely as I had expected. I invited her to guest post here because I knew she’d have something authentic and beautiful to say, and she didn’t disappoint.

***

I have been excited about guest posting at Robin’s site, and I’m so grateful she’s invited me. Thank you, Robin.

I am a PPD survivor. I have, and will always have, the PPD Survivor button up on my site.

My PPD story is a very big part of who I am, but it’s not entirely who I am, as it once was.

My life, when it was in the throes of PPD, was one I never imagined I’d find my way out of. I hoped, I prayed, but never believed I’d be lucky enough to climb out of the dark tunnel that had become my days.

Therapy worked, for the lucky ones. Medication worked, for the lucky ones. But for someone for whom PPD had come to consume every second of every day and every night — like it had for me – I knew I would not be a survivor.

I was barely hanging on by my fingernails.

Even to talk about what my life was like then makes my eyes brim with tears.

If I had to describe what living with PPD feels like to someone who has no experience in this kind of surreal environment, I’d tell them this: picture a churning, dark ocean with ten foot high crashing waves, battering with tremendous force at whatever they slapped. Then see yourself bobbing, right in the center of this storm, alone, arms flailing, growing weaker and losing hope of survival by the minute, with your head barely above the water, despite your struggle to stay afloat.

You just want to stop fighting, and let yourself sink down. To the sweet, quiet bottom. To surrender. You think how peaceful it would feel to just slowly stop trying to keep your head above the water.

But you can’t give in to this thought. You have the responsibility of your baby, who only wants you.

I have pictures of my newborn from this time, but none of me. The haunted face I saw on myself, of this first time mother, was something I couldn’t look at, so I threw out the pictures. Others didn’t see what I saw in those photos: fear, panic, anxiety, depression. Defeat. Disappointment.

I couldn’t sleep. I’d lay awake, thinking about how I needed to sleep.

I couldn’t eat. I’d sit at the table, pushing my food from one corner of the plate to the other — my anxiety not allowing me to swallow.

I couldn’t speak. My unhappiness had such a grip on me that I couldn’t put three words together. How was I supposed to conduct chit chat at the moms’ groups?

I couldn’t smile.

Of all the things PPD did to me, this one, THIS ONE, makes me want to kick its ass.

PPD wouldn’t let me smile for my baby.

I knew I had to see my doctor, who, after our appointment, agreed that something was wrong and started me on a prescription. She also referred me for talk therapy.

These things may have taken the edge off, reduced the crisis.

But I know the real reason for my survival: the kindness of a stranger.

I decided to call the hospital where I delivered to ask if they had any PPD support groups.

I wanted to jump through the phone and kiss the nurse when she answered “yes.” “Yes,” she said, and then continued with the beautiful words, “they meet right here, every Wednesday morning at 9 a.m.”

I would be with people I wouldn’t have to pretend with. I would be with people who understood. All I had to do was hang on until Wednesday, but Wednesday was too far away. I needed something now. I confided to the nurse that my days were made up of minute-to-minute survival. She gave me the phone number of the nurse who facilitated the PPD group.

Her name was Marty, short for Martha, and I called her. I remember her giggly laughter on the phone. I had said something that made her laugh. I surprised myself by smiling. I told her I couldn’t make it until Wednesday.

She said she’d be over in 40 minutes.

She made the drive to my home, sat on the sofa with me and listened, even though there were no words to listen to, only sobs.

She listened until my husband came home from work, with her arm around me, and then she talked with him, about me.

Marty promised me she’d come over every day until my first PPD meeting in two days.

And she was true to her word.

Marty saved my life. She gave me hope, she gave me time, she gave me herself.

Marty is why I will never take the PPD Survivor button on my site down, even though my story is 17 years old.

Because there may be someone, someday, who clicks over, desperately looking for hope.

And I want them to see that we can kick PPD in the ass.

With the help I needed and the kindness of a woman, I survived. I survived something so mentally brutal that I at one time thought it would never end.

It can end. Never give up trying to find a way for it to end.

And if you are a PPD survivor? Please extend your hand to those still trying to climb their way out of the dark tunnel.

Good Day, Regular People
***

I related so much to her description of PPD, and know exactly how it would be that one person coming and sitting with you might make all the difference. Just so you’re not alone.

Because, of course, none of us ever is. Right, Alexandra? Thank you so very much for being here today.

Hope in a Phone Call at PPD to Joy

One evening in August I finished dinner, found something to entertain my son for a while, and picked up the phone. I dialled in to the PPD SpeakEasy, not knowing who would be on the line but knowing it would be largely women I had never met and (mostly) never will. And it was one of the best, most loving, most supportive conversations I’ve had.

I’m sharing the rest of that experience (and this post) on PPD to Joy today. Please come and visit!

 

Postpartum Depression to Joy

 

Yael Saar lost her mother to postpartum depression when she was 6. Years later, when she had kids, Yael struggled with PPD and almost followed in her mother’s footsteps. She survived her suicide attempt and went on to become a silly-side-up mama on a mission: to disarm postpartum depression and anxiety by removing guilt and shame from parenting. Yael served as a national suicide prevention hotline volunteer before she started sharing her story (with coping skills on top) at www.ppdtojoy.com. She is @yaelsaar on Twitter and you can also find her on Facebook.

Yael hosts a monthly ppd support phone chat called the PPD SpeakEasy. It is free, confidential, and loving. This chat happens on the 2nd Tuesday of each month at 8:30pm Eastern. In September, to celebrate her birthday, Yael will be holding 3 SpeakEasy chats. Mark your calendar: in addition to the usual 2nd Tuesday evening call (Sept.13 at 8:30 pm) extra chats will be held on Sunday September 18 at 2:00pm, and Tuesday September 27 at noon (all times are Eastern). The intention is to cater to the needs of mothers with varying lifestyles and time-zones.

For more info and sign up for the call visit Yael’s SpeakEasy page.

 

 

 

Tele-porters and Virtual Hugs

I woke up on Friday to a barrage of tweets for one of my fellow #PPDChat mamas and immediately knew something had happened. Something good.

Our dear friend Pam reached out earlier this week on Twitter and Band Back Together for help. I’ll admit – the depth of her despair freaked me out. I spent a whole lot of time tweeting, sending DMs, and replying to her post. I just needed to do something. Anything. And it felt like it wasn’t enough.

Pam isn’t the only one I’ve desperately wanted to help. If I had any aptitude for inventions I would invent a tele-porter so I could go and see these beautiful mamas when they need a hug. I can’t fix these problems for them – each of us has to work at that ourselves. But a big part of being able to do that is having support. And that is something I can provide, even if that hug is just virtual.

So that’s what I did for Pam – sent hugs and love and support. And then I stalked her Twitter stream, because when someone’s in crisis it’s hard not to do that. I also had the #PPDChat stream open in Tweetdeck and it was constantly scrolling with new tweets, almost all of them directed at Pam. It was like watching a wave of love roll up the screen.

I’ve written about #PPDChat before. It’s an amazing and beautiful thing, and it saved me on a few occasions over the last few months when I needed help RIGHT NOW. It’s so powerful I don’t even know how to put it into words. We have a private Facebook group, which is a great place to share some of the stuff we don’t want in our Twitter streams. But often when one of us needs someone we go to Twitter because we know, without a doubt, that there’s always someone there. We can call on that army, even in the middle of the night, and someone – another mama who can’t sleep or someone in another time zone – will answer. It has never failed me.

It didn’t fail Pam, either. She got that love and it got her through.

So Friday morning, when I saw the #PPDChat stream fill up again with tweets for her, I smiled. She did what she needed to do – she’s going for help, and we’re all going with her.

I don’t have a tele-porter, so I couldn’t get to Pam to give her a hug before she walked through the hospital doors. But the events of this week made me realize that I don’t need to panic about not having some weird device to get me there. (It would probably splinch me anyway.)

We are enough.

Our love is enough.

Our words – our virtual hugs – are enough to save a life.

The Be Enough Me link-up is especially powerful right now – for one month, starting Aug. 22, Bellflower Books is sponsoring us to provide memory books for women fighting breast cancer. Details here – please write about your Be Enough Me feeling and come and link up!